Attitude, awareness, Chronic Illness, Health

Invisible Disabilities Week 2019

It is Invisible Disabilities Week, here is why it is important to raise awareness and increase understanding for those who have invisible disabilities.

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Apheresis, Attitude, Autoimmune Disease, Chronic Illness, Health, optimism, Perspective, Philosophic, plasma exchange, positive, scleroderma, Self-Care, Systemic Sclerosis

Apheresis: Access, Dogs and Perspective – or What I Did Last Summer Part III

Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.

Attitude, Chronic Illness, Health, optimism, Philosophic, positivity, scleroderma, Systemic Sclerosis

Chronic Illness and Post-Traumatic Growth: Bittersweet Reflections

I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.

Attitude, Guest Post, Health, Life Hacks, positivity, Self-Care

How To Stay Positive When In Hospital

How To Stay Positive When In Hospital... I know, I know, you're probably thinking "Has she gone mad?" Even though the beginning was traumatic and life-changing, I had a positive experience (in hospital) and I would like to share my tips on how I stayed positive with you!

Attitude, Chronic Illness, Health, Philosophic, Self-Care

Self-Care, or Whatever You Call It

Lately it seems like I read or hear the term "Self-Care" in various other forms of media many times each day. It is not a term that I can remember hearing growing up, but, while currently on-trend, self-care is nothing new and can be so important to your health. Proactively planning for Self-Care time is as important as ever.

A Reblog, Attitude, Chronic Illness, Guest Post, Health, Life Hacks

Who is in charge of you?

Today’s post is a reblog.  Grateful for this nod from a blogger I and so many others highly respect, Carolyn Thomas of HeartSisters.org

Heart Sisters

by Carolyn Thomas   @HeartSisters     July 21, 2019

And you thought YOU had a lot of medical appointments. . .

Writing on her blog, Sick With Optimism, a Canadian patient regularly sees three nephrologists from three different clinics, two hematologists, two rheumatologists, a cardiologist, her GP – “as well as so many interns, inpatient doctors and fellows, I can’t even count!”

I was profoundly moved by her story about how one of her many recent doctors’ appointments evolved. . .

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Attitude, Health, Philosophic

One Liner Wednesday – “Good is Better than Fair”

Children tend to focus a great deal on fairness, I would love to tell my younger self to focus more on what is good than what is fair, with that perspective we can appreciate our lives so much more, even when we are ill. #1linerWednesday

Attitude, GERD, Health, scleroderma, Systemic Sclerosis

Bone Density Testing: A Consideration When Taking PPI’s

I was surprised when picking-up my new PPI prescription to find out that these drugs, when taken over long-periods of time by scleroderma patients (and others with serious GERD) can lead to osteoporosis. I was little concerned about having a bone density test but it was actually breeze!

Attitude, Health, hope, optimism, Philosophic, stem cell transplant

Hopelessness vs Disappointment

When the doctor delivered the news I thought to myself,, "Well it's hopeless, I'm never getting better." I hadn't realized how much I was counting on this treatment working. Was I a fraud? Had optimism failed this hurdle?

Attitude, Health, Life Hacks, Philosophic

Smile Until You (and Those Around You) Feel Better

Smiles are contagious! Smiling provides benefits not only to your mood but your overall health as well. The good news is that smiling can become a habit we learn through practice.