Apheresis, Attitude, Autoimmune Disease, Chronic Illness, Health, optimism, Perspective, Philosophic, plasma exchange, positive, scleroderma, Self-Care, Systemic Sclerosis

Apheresis: Access, Dogs and Perspective – or What I Did Last Summer Part III

Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.

Attitude, Chronic Illness, Health, optimism, Philosophic, positivity, scleroderma, Systemic Sclerosis

Chronic Illness and Post-Traumatic Growth: Bittersweet Reflections

I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.

Attitude, Health, hope, optimism, Philosophic, stem cell transplant

Hopelessness vs Disappointment

When the doctor delivered the news I thought to myself,, "Well it's hopeless, I'm never getting better." I hadn't realized how much I was counting on this treatment working. Was I a fraud? Had optimism failed this hurdle?