As I am writing this post one of my younger cousins is getting married. Yes, literally the ceremony is taking place right now! I am not there, but I am making the best of it.
It is Invisible Disabilities Week, here is why it is important to raise awareness and increase understanding for those who have invisible disabilities.
Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.
I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.
Lately it seems like I read or hear the term "Self-Care" in various other forms of media many times each day. It is not a term that I can remember hearing growing up, but, while currently on-trend, self-care is nothing new and can be so important to your health. Proactively planning for Self-Care time is as important as ever.
Today’s post is a reblog. Grateful for this nod from a blogger I and so many others highly respect, Carolyn Thomas of HeartSisters.org
And you thought YOU had a lot of medical appointments. . .
Writing on her blog, “Sick With Optimism“, a Canadian patient regularly sees three nephrologists from three different clinics, two hematologists, two rheumatologists, a cardiologist, her GP – “as well as so many interns, inpatient doctors and fellows, I can’t even count!”
I was profoundly moved by her story about how one of her many recent doctors’ appointments evolved. . .
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