Health, Product Review, Raynaud, Raynaud's Hacks, raynaud's phenomenon, Scleroderma Hacks, Systemic Sclerosis

November Raynaud’s Hack: Vinyl Food Prep Gloves

Brrr, November has been so cold already, I recently decided to experiment with glove layering to protect my hands from a Raynaud's attack and it led me to a discovery that helped me out with a year-long problem of Raynaud's episodes while shopping in supermarkets. Looks a little silly, but food prep gloves are my latest hack for Raynaud's...

Apheresis, Attitude, Autoimmune Disease, Chronic Illness, Health, optimism, Perspective, Philosophic, plasma exchange, positive, scleroderma, Self-Care, Systemic Sclerosis

Apheresis: Access, Dogs and Perspective – or What I Did Last Summer Part III

Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.

Attitude, Chronic Illness, Health, optimism, Philosophic, positivity, scleroderma, Systemic Sclerosis

Chronic Illness and Post-Traumatic Growth: Bittersweet Reflections

I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.

Attitude, GERD, Health, scleroderma, Systemic Sclerosis

Bone Density Testing: A Consideration When Taking PPI’s

I was surprised when picking-up my new PPI prescription to find out that these drugs, when taken over long-periods of time by scleroderma patients (and others with serious GERD) can lead to osteoporosis. I was little concerned about having a bone density test but it was actually breeze!