Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.
I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.
Lately it seems like I read or hear the term "Self-Care" in various other forms of media many times each day. It is not a term that I can remember hearing growing up, but, while currently on-trend, self-care is nothing new and can be so important to your health. Proactively planning for Self-Care time is as important as ever.
Children tend to focus a great deal on fairness, I would love to tell my younger self to focus more on what is good than what is fair, with that perspective we can appreciate our lives so much more, even when we are ill. #1linerWednesday
When the doctor delivered the news I thought to myself,, "Well it's hopeless, I'm never getting better." I hadn't realized how much I was counting on this treatment working. Was I a fraud? Had optimism failed this hurdle?
Sometimes a doctor while trying to be delicate may not be direct enough to be clear to you. Your healthcare team is an easy blame when things do not go as you had hoped for you or a loved-one. If we are not clear it is up to us as patients and caregivers to ensure we have no allusions about treatments and prognosis.
Smiles are contagious! Smiling provides benefits not only to your mood but your overall health as well. The good news is that smiling can become a habit we learn through practice.
At first blush International Day of Happiness, for the unhappy, might seem a trite and weak attempt to impose an imperative of worldwide happiness, but when you do a little research and thinking on the topic, it may be the all-important push it takes for those who wish it to make a change for happiness. Dalai Lama XIV points out that happiness (like optimism) isn't given to you, it comes from your own actions.
March is Autoimmune Disease Awareness Month, the 14th is World Kidney Day; just not enough months, weeks and days for all of the worthy issues #ADAM19 #autoimmuneawareness #worldkidneyday #ThursdayThoughts #scleroderma
When you are seriously ill, sometime you have to be the calm one to support your friends and family, Positive affirmations you make to worried friends and family might also help you in your journey to remain calm and hopeful.