Apheresis, Attitude, Autoimmune Disease, Chronic Illness, Health, optimism, Perspective, Philosophic, plasma exchange, positive, scleroderma, Self-Care, Systemic Sclerosis

Apheresis: Access, Dogs and Perspective – or What I Did Last Summer Part III

Like many people with autoimmune diseases, I receive therapeutic plasma exchange treatments. It is, however, less common for folks with scleroderma. Because I go to the Apheresis clinic twice per week this summer I tried to get a new port for access.

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Attitude, Chronic Illness, Health, optimism, Philosophic, positivity, scleroderma, Systemic Sclerosis

Chronic Illness and Post-Traumatic Growth: Bittersweet Reflections

I read about Post-Traumatic growth for this first time in March on the Heart Sisters Blog. Life with a chronic illness-scleroderma- may have gotten worse on a physical level, but I felt conflicted because in some deeper ways I believed that I was changed for the better.

Attitude, GERD, Health, scleroderma, Systemic Sclerosis

Bone Density Testing: A Consideration When Taking PPI’s

I was surprised when picking-up my new PPI prescription to find out that these drugs, when taken over long-periods of time by scleroderma patients (and others with serious GERD) can lead to osteoporosis. I was little concerned about having a bone density test but it was actually breeze!

Health, Life Hacks, Raynaud's Hacks, Scleroderma Hacks

5 Cold Drink Hacks for Raynaud’s Protection

There is nothing as refreshing as a nice cold drink on a hot summer day! The problem if you suffer from Raynaud's Phenomenon, touching cold objects, even for a few seconds can bring on a damaging event. Here are Five Easy Hacks to Prevent Raynaud's episodes

Attitude, Health, hope, optimism, Philosophic, stem cell transplant

Hopelessness vs Disappointment

When the doctor delivered the news I thought to myself,, "Well it's hopeless, I'm never getting better." I hadn't realized how much I was counting on this treatment working. Was I a fraud? Had optimism failed this hurdle?

Attitude, Health, Life Hacks, Philosophic

Smile Until You (and Those Around You) Feel Better

Smiles are contagious! Smiling provides benefits not only to your mood but your overall health as well. The good news is that smiling can become a habit we learn through practice.

Attitude, Health

Then There was That Time I Got Sick From Optimism…

Time to share the next chapter of my journey with Scleroderma, that time when I actually got sicker with optimism... I believe that being optimistic is a choice, and it can be made stronger when tempered by reality.

Health, Philosophic

March is Autoimmune Awareness Month

March is Autoimmune Disease Awareness Month, the 14th is World Kidney Day; just not enough months, weeks and days for all of the worthy issues #ADAM19 #autoimmuneawareness #worldkidneyday #ThursdayThoughts #scleroderma

Health, Life Hacks

Layering Gloves to Prevent Raynaud’s Episodes

This year it seems like winter just won't end! For those with Raynaud's Phenomenon, winter can seem even longer. To help prevent Raynaud's episodes when extremely cold this blogger experimented with layering latex gloves under fleece mittens.

Health, Philosophic

I Will Tell You When to Panic

When you are seriously ill, sometime you have to be the calm one to support your friends and family, Positive affirmations you make to worried friends and family might also help you in your journey to remain calm and hopeful.